- First Nations Information Governance Centre (FNIGC). 2016. “Pathways to First Nations’ data and information sovereignty.” Indigenous Data Sovereignty: Toward an agenda, pp. 139-156. Canberra, Australia: Australian National University (ANU).
In 1994, the Government of Canada launched three major national longitudinal health surveys that excluded First Nations people, even though, at that time, the greatest data gap existed for First Nations people living ‘on reserve’. The federal government eventually moved to address this deficiency with a new supplemental survey, subsequently named the First Nations and Inuit Regional Health Survey (RHS), to collect data on reserve. To try to ensure the success of the new survey, a group of First Nations representatives came together from coast to coast, formulated the RHS Steering Committee and took over the project and resources from the Canadian government. The RHS project created space in the Canadian research environment in which to progress rapidly towards data jurisdiction and it helped secured the environment for data and information sovereignty that fundamentally changed the way that research on and with First Nations was conducted in Canada.